Many service users are keen to take part in research, and can find it a positive and empowering experience. Research can find answers to things that are unknown, filling gaps in knowledge and changing the way that healthcare professionals work and as such, BSMHFT wishes for all service users and carers to be given as much opportunity as possible to participate.
Past participants have said:
“I find that the opportunity to contribute to research provides me with a feeling of satisfaction and although such research may not benefit me directly, it may prove to be of help for future generations… The appointments are always carried out with a great deal of professionalism and care which is much appreciated and I am always made to feel very much at ease [when taking part in a study].”
“It was an interesting experience [to take part in a research study]; challenging questions that helped me see what I could/couldn’t do/remember. Both staff were friendly and encouraging and it was a positive experience. I am happy to help with any further research.”
“[The research] gave a real insight into various ways that Alzheimer’s can effect a person. It was a great opportunity to voice our views around personal experiences. [The staff was] completely professional and I would be happy to assist further”
If you are a service user and would like to take part in research, please visit our current research page for more information on which studies are open to recruitment.
The Trust takes keeping participant data safe very seriously and has produced a key patient information leaflet to explain how records maybe used for research purposes. The HRA has produced further guidance on how patient information is collected and used in health and care research. This guidance can be found on the HRA website.
